Maine LD 84: An Act Concerning Screening of Newborns for Lysosomal Storage Disorders

LD 84 (subjects: HEALTH CARE SERVICES , CHILDREN )

Official bill page at mainelegislature.org: http://www.mainelegislature.org/legis/bills/display_ps.asp?ld=84&PID=1456&snum=127

Sponsors | Actions | Bill Text | Patterns of Support

Actions

	Chamber	Action
1/20/2015	Senate	Committee on HEALTH AND HUMAN SERVICES suggested and ordered printed On motion by Senator Brakey of Androscoggin REFERRED to the Committee on HEALTH AND HUMAN SERVICES Ordered sent down forthwith for concurrence.
1/20/2015	House	Bill REFERRED to the Committee on HEALTH AND HUMAN SERVICES. In concurrence. ORDERED SENT FORTHWITH.
5/6/2015	Senate	Pursuant to Joint Rule 310.3 Placed in Legislative Files (DEAD)

Bill Text

An Act Concerning Screening of Newborns for Lysosomal Storage Disorders

Be it enacted by the People of the State of Maine as follows:

Sec. 1. 22 MRSA 1533, sub- 2, D-1 is enacted to read:

D-1. Explore options for entering into contracts with other states to test samples collected during screening for lysosomal storage disorders;

Sec. 2. Department of Health and Human Services to amend rules on the newborn screening program. By January 1, 2016, the Department of Health and Human Services shall amend its rules in Chapter 283 relating to testing newborn infants for detection of causes of cognitive disabilities and congenital, genetic and metabolic disorders to include screening for the lysosomal storage disorders known as Krabbe, Pompe, Gaucher, Fabry and Niemann-Pick diseases.

SUMMARY

This bill requires the Department of Health and Human Services to amend its rules in Chapter 283 by January 1, 2016 to add to the newborn screening program the lysosomal storage disorders known as Krabbe, Pompe, Gaucher, Fabry and Niemann-Pick diseases. It authorizes the department to explore options to enter into contracts with other states to test samples collected for lysosomal storage disorders.

Patterns of Support

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This information about LD 84 was last updated on 2016-05-12.
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